February 11, 2008 at 7:55 pm (PGP, SPD, hospital)
Tags: consultant, SPD, surgery option, symphysis pubis dysfunction
Having received my confirmation letter for my February 19th appointment, I decided to use the magic of Google to look up the consultant I’m seeing. My lovely physiotherapist had told me he was “very good”, so I was hopeful. Here is what I found:
“Mr Mohanty is the only surgeon in Cardiff with a special interest in surgical treatment of pelvic conditions. He deals with acute fractures of the pelvis and hip socket and also carries out complex delayed reconstruction following trauma. Mr Mohanty has a special expertise in dealing with post- pregnancy pelvic instability and has carried out successful stabilisation procedures in women with such painful instability of pelvis following child birth.“
I’m not the only one bored of being in pain... though I must admit my NHS waiting list times have been pretty short so far!
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February 11, 2008 at 7:13 pm (PGP, SPD)
Tags: important, petition, sign now, SPD, symphysis pubis dysfunction, symphysis pubis dysfunction help, symphysis pubis dysfunction petition
“We the undersigned petition the Prime Minister to Fund research into the disabling pregnancy related conditions of Symphisis Pubis Dysfunction (SPD) and the more severe form Dyastasis Symphisis Pubis (DSP)”
If your beliefs tally with the above ones, PLEASE sign the SPD Care Government Petition. Who knows, it really could help - if not us, then perhaps our daughters.
“SPD (and DSP) affects the pelvis in early pregnancy and is related to hormonal changes. In SPD the pelvic tendons slacken too much and basically cripple the sufferer, meaning they depend on mobility aids to get around. Usually, SPD corrects itself after birth, as hormones return to normal. However, if it doesn’t it’s known as the more severe form: DSP. The sufferer then has a permanent instability in their pelvis, leading to chronic pain and limited mobility, resulting in a dependence on mobility aids. Aside from the physical issues, the condition has a psychological effect on the sufferer, leading to depression and a reliance on strong pain killers. This affects the whole family, often resulting in one partner leaving work to care for their family, which compounds the psychological issues of the sufferer. This is a massive drain on NHS resources, and there is no clear path of treatment and no known investigation into identifying the causes, preventing, or resolving the condition.”
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February 11, 2008 at 1:59 pm (PGP, SPD, hospital, rant)
Tags: SPD, symphysis pubis dysfunction, orthopaedic, babycentre, forums, medical, appointments, consultant, worry, crawling, rolling, redhead, Pelvic partnership, email, phone
For early February, and Wales, it’s stupidly wonderful weather that we’re having. Wonderful being a totally subjective idea, of course. I’m hating it! I hurt too much to even think about going outside to frolic in the sunshine (what an image), and even if I could - I’m a redhead. I’m pale. I’m freckled. Consider. Sunshine, as a general rule, is not my friend. Ah, well, I wonder if Henry will be the same way? Who knows.
Henry’s learnt to roll, and will happily roll from one end of the room to another. He pivots as his way of changing direction. Quite clever really. Every 5 minutes or so he needs to be put on a different side of the room so he a)doesn’t hit anything and b) doesn’t get bored and upset. He likes to watch television in crawling position, we keep watching him closely and wondering if he will in fact crawl, or skip it altogether and keep on rolling. After all, rolling over musical toys is a fun and easy way to get them to play songs to you, isn’t it? Button pressing’s fun too, and a new skill he’s mastered, but I don’t think it’s quite as fun for him!
So, fun things this week - ummm… for once, I don’t actually think that I’ve got any medical appointments! The shock, the horror. Next week, however, is the big orthopaedic consultant appointment! I’m attempting to gather information from the good people on the babycentre forums , the babyworld forums and the madmums forums about what I should ask about - so I hope that they’ll have some ideas!
I contacted the Pelvic Partnership by email, as I don’t feel very comfortable talking about my personal details by phone - in person or by writing suits me far more. The good news - I got a reply very quickly, within 2 working days. The bad news, “…Sadly I have very little experience with ’surgery’ but my colleague Sarah our chair has much more knowledge and experience. You can call and leave a message on her number… she will call you back as soon as she can.” I guess I won’t be getting any help then.
Philippa, who was the woman who took the time to reply to me, sent a lovely email, it just wasn’t very helpful for me personally.
I’ll keep plugging away, hoping for the best, though. It’s all I seem to do. Slightly depressing but what else is there? Oh yes, enjoying life. Hard to do around a strict, seemingly endless, medication timetable, but possible. I love my boyfriend and our son and I know I’m lucky to have them, it’s just unfortunate that all this pain goes with something that should have been such a natural process!
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